Tuesday, June 14, 2011

GI clinic update

So GI appt went well. I really like his doctor. Bc he only refluxes a lot when he is trying to poop she wants to wait on the surgery to tighten the valve above the stomach. She has an interesting theory that makes sense to me but I would've never thought of it. She is ordering a rectal biopsy to check to see if he is missing the nerve endings that tell the muscles around the rectum to push. She got to witness his struggle to get a very soft BM out and his face turns red and he grunts. I am not exactly sure what, if anything, can be done to "fix" it if that is the case. She has instructed me to add miralax daily with his lactulose and to use a glycerin suppository (or thermometer or finger) to stimulate bowel movement every other day if he doesn't go on his own. So we will do that first and may do a PH probe later followed by surgery if needed or if he gets another respiratory infection. She hopes he outgrows the reflux. She also mentioned his anus being lower than usual. That could be causing issues too but she said the opening is a little on the small side but not extreme. So hoping after his biopsy that should be scheduled soon will bring answers and direction to help him. Thankfully this biopsy isn't painful (just uncomfortable) and will not need sedation of any sort. Just an enema before to clear him out.

2 comments:

  1. Sounds like a productive appointment and you got a lot of great tricks of the poop trade. LOL The Miralax is nice because, being a powder, you can easily adjust the dosage as needed. (hugs)

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  2. Hi
    My name is Jenna and I came across your site. Collin is an amazing courageous, strong and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and developmental delays. I love it when people sign my guestbook. www.miraclechamp.webs.com

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