Another test brings bad news...

Colin had a barium study done 2 days ago to check why he is still refluxing so bad after his malrotation surgery done in December. I went fully expecting to get news that he would need a fundoplication surgery. I left wanting to cry. They found barium coating his trachea meaning he had the dye in his airway and could be the reason he has had so many lung infections. However they repeated the GI study with a dysphagiogram where they check to see if he aspirates while eating/swallowing. That test was completely negative. So we left with more worries and more questions and more tests to be done in the future. The pulmonologist called yesterday to discuss her concerns and what she wants done. Basically she wants to see if he gets sick during the summer months. If he has more respiratory infections then she wants an airway evaluation done where they put him under to stick cameras down his throat to get good looks at all parts of his airways. She doesn't want to do that to him unless he gets sick again though. Also something to discuss if he does get pneumonia or another resp infection is whether they should stop feeds by mouth and surgically place a gtube. It has been a rough couple of days because of this news. Also the barium they use for both tests cause severe constipation and he is just miserable. He has thrown up several times bc of it. Just breaks my heart to see him in pain. Luckily I don't have to work until Monday so hopefully today or tomorrow he will finally get the barium out.